Ethics in Genetics

Topic: Carrier Screening

Many genetic ethical issues exist in today’s healthcare environment. The ethical and philosophical issues surrounding the human genome center on three core concerns:

  1. Privacy and confidentiality
  2. Genetic testing
  3. Altering the genetic code through genetic therapies

The ability to manipulate human genotypes and phenotypes raises a number of important ethical questions. For this project, you will:

  1. Be assigned one of these genetic issues with ethical implications:
    1. Carrier screening
    2. Designer babies
    3. Genetic engineering
    4. Genetic testing by insurance companies
    5. Gene therapy
    6. Pharmacogenetics
    7. Pre-symptomatic testing
    8. Stem cells
    9. Workplace genetic screening
  2. Research the issues along with the pros and cons.
  3. Develop an argument for each side.
  4. Discuss what side you personally agree with.
  5. Integrate relevant learning from chapters 9–11.
  6. Create a Kaltura video recording with PowerPoint presentation (PPT) slides to disseminate your findings. Your recording should be 10 to 12 minutes in length.

Consider the following questions in your research:

  • What criteria should be met before proving that an experimental therapy is safe enough and ethical enough to begin investigating in humans?
  • Is the scientific review process sufficient? What constitutes adequate oversight of gene therapy trials?
  • Are protocol guidelines in the best interest of research study participants?
  • Who decides which traits are normal and which constitute a disability or disorder?
  • Will the high costs of gene therapy make it available only to the wealthy?
  • Could the widespread use of gene therapy make society less accepting of people who are different?
  • Should gene therapy be used to enhance basic human traits, such as height, intelligence, or athletic ability?
  • Should gene therapy be used to alter germ-line traits?
  • How can “good” and “bad” uses of gene therapy be distinguished?

 

  • Health Care Ethics: Critical Issues for the 21st Century
    • Chapter 9: Ethics and Safe Patient Handling and Mobility pp. 153–157
    • Chapter 10: Spirituality and Healthcare Organizations pp.161–178
    • Chapter 11: A New Era of Health Care Reform pp. 183–191
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