Ethics in Genetics
Topic: Carrier Screening
Many genetic ethical issues exist in today’s healthcare environment. The ethical and philosophical issues surrounding the human genome center on three core concerns:
- Privacy and confidentiality
- Genetic testing
- Altering the genetic code through genetic therapies
The ability to manipulate human genotypes and phenotypes raises a number of important ethical questions. For this project, you will:
- Be assigned one of these genetic issues with ethical implications:
- Carrier screening
- Designer babies
- Genetic engineering
- Genetic testing by insurance companies
- Gene therapy
- Pharmacogenetics
- Pre-symptomatic testing
- Stem cells
- Workplace genetic screening
- Research the issues along with the pros and cons.
- Develop an argument for each side.
- Discuss what side you personally agree with.
- Integrate relevant learning from chapters 9–11.
- Create a Kaltura video recording with PowerPoint presentation (PPT) slides to disseminate your findings. Your recording should be 10 to 12 minutes in length.
Consider the following questions in your research:
- What criteria should be met before proving that an experimental therapy is safe enough and ethical enough to begin investigating in humans?
- Is the scientific review process sufficient? What constitutes adequate oversight of gene therapy trials?
- Are protocol guidelines in the best interest of research study participants?
- Who decides which traits are normal and which constitute a disability or disorder?
- Will the high costs of gene therapy make it available only to the wealthy?
- Could the widespread use of gene therapy make society less accepting of people who are different?
- Should gene therapy be used to enhance basic human traits, such as height, intelligence, or athletic ability?
- Should gene therapy be used to alter germ-line traits?
- How can “good†and “bad†uses of gene therapy be distinguished?
- Health Care Ethics: Critical Issues for the 21st Century
- Chapter 9: Ethics and Safe Patient Handling and Mobility pp. 153–157
- Chapter 10: Spirituality and Healthcare Organizations pp.161–178
- Chapter 11: A New Era of Health Care Reform pp. 183–191
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